My Fight Against Mycosis Fungoides - Weeks 11 and 12

Weeks 11 and 12

Playing the waiting game isn’t easy. I’ve been looking for signs of improvement on my skin and I haven’t seen much. There have been some changes (brace yourself for TMI). I think my estrogen level is getting balanced with my new diet. My monthly cycle is back to normal, which is a blessing. I also have less facial hair—no medication or laser treatment needed.

Exercise revelations

I’ve been doing high intensity interval training (HIIT). It’s touted as the best way to get the most benefit out of exercising. Basically you push yourself for 20 to 40 seconds then rest for equal time. By doing this, you’re giving your body time to turn the lactic acid that builds up into fuel instead of letting it sit in your body by continually exercising. I love this because it makes sense. Running five miles straight at my age doesn’t seem smart. Getting my heart rate up in intervals isn’t too taxing for my body either. I like this one with the Body Coach - click here. It took me a few weeks to make it through nonstop, but I can do it now. I do it in the mornings before eating.

Health Care Facilities Rant

I don’t like bashing health care facilities, but the way they run is completely inadequate. I needed to find out how much my upcoming blood work will cost at MUSC. I called the number I was given by the appointment setter, but it wasn’t the correct number. I was sent to a financial counselor, but she didn’t have the information I needed. I was sent to the department where my labs were ordered—wrong place again. I was then sent to the actual lab—nope. The lab then sent me to the lab services department, which was the right department. But wait…not so fast. They can’t give me the information I need over the phone because of HIPPA laws. So I can make and cancel my appointment over the phone, but I can’t find out how much their services are going to cost me. In any other business this would be absolutely ridiculous, but we tolerated in healthcare as the norm. I was so frustrated by the end of this ordeal that I postponed the appointment. I just couldn’t believe the madness. How can I trust these people to help me? I’m just praying I won’t need their services. I’m praying for healing.

Foods/Things I Stopped (along with everything from weeks 1-10):

Took a pause from green drinks, but I am eating more vegetable

Foods/Things I Started (along with everything from week 1-10):

I love these muffins (I replaced the chocolate chip with raisons)

Banana/raison (to make sugarless oatmeal cookies)